Development of Indonesian Cancer Registry System (CANREG 5)

Overview

Based on data from the Ministry of Health of the Republic of Indonesia, 12% of all deaths in the world are caused by cancer and the disease has become the number two cause of death after cardiovascular disease. While in Indonesia, the prevalence of tumor / cancer is 4.3 per 1,000 population (Ministry of Health of the Republic of Indonesia, 2011). Cancer is the seventh leading cause of death (5.7%) after stroke, tuberculosis, hypertension, and perinatal. The high rate of mortality in cancer patients because most patients begin treatment when the cancer has reached the final stage. The death rate can be minimized if the cancer can be detected earlier. Some countries have a program called the National Cancer Control Programme which aims to reduce the number of cancer cases and cancer deaths by improving the quality of life of cancer patients. One of the most important activities in the programme  is cancer registration.

To assist countries in the world to implement the registration process of cancer, the World Health Organization (WHO) provided software called CANREG. By using this software the WHO hopes that the cancer registration process can proceed smoothly. However, the peculiarities of each country or region makes this software can not be used directly. Need to do some modifications, especially regarding the type and content of the variable recording. One country that does this is the country of Indonesia with its software called SRIKANDI which is a modified version of the program CANREG 4. Currently CANREG software has reached version 5, which is an improvement from previous versions.

Key Features

• The database can be adjusted, so that the variable can store data that has been specified by the user.
• Language on the menu can be adjusted to the language of the countries that use it.
• Has the facility to check the duplication of data.
• Has a system to backup and restore databases.

Research Opportunities

Development models CANREG 5 requires the following organization (Pardamean & Suparyanto, 2013):

1. Cancer Registration Unit (UCR). UCR charge of patient data entry in their units. They have a responsibility to mmerekam all variables that have been included in CANREG 5.
2. Hospital Cancer Registration Center (HCRC). HCRC has the responsibility to collect all the data recorded on each unit in their hospital. They also have the responsibility to validate all of the data collected. Every province in Indonesia must have at least one HCRC.
3. National Cancer Center (NCC). NCC is a reporting center for all data storage for Indonesia. The NCC should collect data from each HCRC in Indonesia.

These three models are run locally CANREG 5 (stand-alone), fragmented networks, and integrated network (Pardamean & Suparyanto, 2013).